Funding boost to promote blood and organ donation amongst Black and Asian communities

35 community projects in England have received a share of £600,000 funding as part of the Government’s commitment to tackle health inequalities in Black and Asian communities.

The announcement of the funding aptly comes on World Kidney Day (March 11) and aims to address the shortage of organs, particularly kidneys, for those waiting for a transplant from all Black, Asian, mixed heritage and minority ethnic backgrounds. Whilst also highlighting the need for more blood donors from a black background, whose blood is used to treat patients with conditions like sickle cell.

The Community Investment Scheme, which is led by NHS Blood and Transplant, will fund local organisations to drive awareness, understanding and behaviour change.

Having previously only focussed on promoting organ donation, the scheme has now been opened to include projects which also highlight the importance of blood donation.

Finding the best match

For many patients in need of a transplant the best match will come from a donor from the same ethnic background.

In the UK there are currently estimated to be at least 2,569 people on the waiting list for a kidney transplant and 580 of those are from Black, Asian or minority ethnic backgrounds.

Kidney donors and recipients are matched by blood group and tissue type, and people from the same ethnic background are more likely to have matching blood groups and tissue types.

Black, Asian and minority ethnic patients often have to wait significantly longer for a successful match than white patients, due to a shortage of suitably matched donors.

Saj's story

Saj Khan has been waiting 14 years for a kidney transplant after his first one failed.

Saj was at University in Manchester when he suddenly became ill aged 19. He returned home to Birmingham see his GP and was immediately referred to hospital, where he was diagnosed with renal failure due to the fact he had been born with kidneys which were too small.

In 2002 he received a kidney from his dad which enabled Saj to complete his degree, returning to university in Birmingham. Sadly though, just one week after graduating in 2006, his new kidney failed, putting him back on the waiting list and a life of dialysis.

Saj said: “It was a worrying time as I was so focussed on my studies. When I became ill then finally receiving a kidney from my dad was like a lifeline for me. Unfortunately, it wasn’t to be long term and I am back on dialysis, but I am always hopeful I will get the transplant I need.”

 “I know my best chance for a transplant is probably from a living donor as I have such high antibodies from my first transplant, so it is difficult for me to find a match. And being from a South Asian background, I know I will wait longer and it’s harder to get a match because so few Asians donate organs compared to white people.

“Organ donation is very much a personal choice, and everyone needs to choose what is right for them. I know that for many people in the Asian community organ donation is seen as impermissible in their faith, but as a Muslim I believe it is very much in line with my faith and beliefs – the ability for people to save lives.”

New projects

One of the 35 projects taking part in the Community Investment Scheme this year is Bristol African Caribbean Expo (BACE) & Bristol Community FM Radio (BCFM) whose aim is to create a podcast series that will be shared across multiple platforms. The series will address the lack of awareness of both blood and organ donation in Black African and Caribbean communities.

Primrose Granville from BACE said: “We are delighted to be recipients of NHS Blood & Transplant, Community Investment Scheme funding.

We are an organisation which is deeply embedded in the local area and has strong grassroot links to the community which we hope to engage throughout the project. All of the work we do is focussed on the local communities and we want to prove that these communities are not hard to reach.”

“Together we will be creating ten podcasts over twelve months to highlight the health inequalities relating to both blood and organ donation and how this specifically impacts our communities.

“One of the topics we are keen to explore further is highlighting how the shortage of both blood and organs within the Black African and Caribbean communities can lead to further medical conditions.

“We also want to discuss the mental impact of waiting for an organ and delving deeper in the lives of people whose families are affected by sickle cell and rely heavily on blood transfusions from anonymous donors.”

See a full list of the projects funded in this round of the Community Investment Scheme (PDF 147KB)

Making progress

Since its launch in 2018, the Community Investment Scheme has supported 43 organisations to deliver 50 community-led projects. With around 4,000 people engaging in conversation or taking away a leaflet or information on the importance of organ donation and 8,000 attending a talk or workshop.

There is hope that the introduction of Max and Keira’s Law – the new law relating to organ and tissue donation in England – which came into effect on 20th May 2020, will lead to an increase in the number of donors of all ethnicities. However, families will still be consulted before donation goes ahead so it remains essential to raise awareness, challenge misinformation and encourage those supportive of organ donation to talk with their families.

Altaf Kazi, Head of Faith and Belief Engagement at NHS Blood and Transplant, said: “Through the Community Investment Scheme we have seen first-hand the abilities of trusted individuals and community groups to prompt conversation, tackle misinformation, educate and offer reassurance around organ donation and now blood donation.

“Often a person’s best donor match will share their ethnicity, but too many donation opportunities are missed because families haven’t discussed organ donation, and Black and Asian people are seriously underrepresented when it comes to donating blood.  

“We are asking more people from Black and Asian communities to find out about both blood and organ donation and help us to address the inequalities that many members of these communities may face. By giving your support you can help save lives.”

For more information about the Community Investment Scheme please visit our dedicated CIS webpages or contact: community.funding@nhsbt.nhs.uk